As Parkinson’s Disease (PD) patients and research advocates, we remain hopeful that the whirlwind of research and translational studies which flood the pages of journals around the world will result in treatments that significantly improve quality of life for people with PD within our lifetime. While the Parkinson’s community continues to wait, however, we must […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklCategory: Patient perspectives
Sharon Roman: My doctors, my placebo effect
An excellent patient-doctor relationship is capable of doing much good, even when medicine no longer can […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklAnya de Iongh: Are patients and carers healthcare’s untapped workforce?
On Wednesday 31 January, the dark and cold weather was a contrast to the warmth, passion, and dynamism of the contributions to The BMJ’s first Twitter chat of 2018. 800 plus tweets were sent from over 125 people on the topic of patients as partners in the workforce. The chat was stimulated by Tessa Richards’s BMJ […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklDawn P Richards: The patient as a person
We need to recognise individuals as more than simply a patient […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklHumanising birth: Does the language we use matter?
Language matters as a way of respecting women’s views and ensuring that they are empowered to make decisions […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklElizabeth Jameson: “I wish my health provider knew…”
As a person living with the progressive illness of Multiple Sclerosis, I visit my waiting room often. This experience can be stressful and isolating not only for visitors who are patients, but also for visitors who are there in support. In this environment, it’s hard to realise that we are all in it together, going […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklJeremy Taylor: There are reasons for patients to welcome Hunt’s return to the Department of Health and Social Care
What, as patients, are we to make of the re-appointment of Jeremy Hunt, yet again, to the government’s health brief? […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklKirsty Gadsby on delayed diagnosis: “I felt validated after years of feeling a fraud”
Listening to patients and thinking outside the box can make the difference between diagnosis and dismissal, says Kirsty Gadsby […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklAnya de Iongh: Patients need to be activated, but so do clinicians and the system
It has been three and half years since The King’s Fund published a report on Patient Activation, and since then patient activation is increasingly on people’s radars. Patient activation is a model of an individual’s level of knowledge, confidence, and skills for managing their own health and healthcare, with highly activated patients taking responsibility and […]
djfhdkfdkjfhakdjfhkadsfhldksjfajdfkdajfhkdlsfhkdlsfhkdsfhskldfhdkfhdsklAnnette McKinnon: Patients need equal access to information
I was diagnosed with rheumatoid arthritis in the days before the internet, so I had to rely on magazines and newspaper articles as a back-up to the sparse information that my doctor provided. Once I had a computer I enthusiastically joined patient support groups and used those that relied on research papers and information from […]
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