As Parkinson’s Disease (PD) patients and research advocates, we remain hopeful that the whirlwind of research and translational studies which flood the pages of journals around the world will result in treatments that significantly improve quality of life for people with PD within our lifetime. While the Parkinson’s community continues to wait, however, we must […]
An excellent patient-doctor relationship is capable of doing much good, even when medicine no longer can […]
On Wednesday 31 January, the dark and cold weather was a contrast to the warmth, passion, and dynamism of the contributions to The BMJ’s first Twitter chat of 2018. 800 plus tweets were sent from over 125 people on the topic of patients as partners in the workforce. The chat was stimulated by Tessa Richards’s BMJ […]
We need to recognise individuals as more than simply a patient […]
Language matters as a way of respecting women’s views and ensuring that they are empowered to make decisions […]
As a person living with the progressive illness of Multiple Sclerosis, I visit my waiting room often. This experience can be stressful and isolating not only for visitors who are patients, but also for visitors who are there in support. In this environment, it’s hard to realise that we are all in it together, going […]
What, as patients, are we to make of the re-appointment of Jeremy Hunt, yet again, to the government’s health brief? […]
Listening to patients and thinking outside the box can make the difference between diagnosis and dismissal, says Kirsty Gadsby […]
It has been three and half years since The King’s Fund published a report on Patient Activation, and since then patient activation is increasingly on people’s radars. Patient activation is a model of an individual’s level of knowledge, confidence, and skills for managing their own health and healthcare, with highly activated patients taking responsibility and […]
I was diagnosed with rheumatoid arthritis in the days before the internet, so I had to rely on magazines and newspaper articles as a back-up to the sparse information that my doctor provided. Once I had a computer I enthusiastically joined patient support groups and used those that relied on research papers and information from […]