ePatients
The Medical, Ethical and Legal Repercussions of Blogging and
Micro-Blogging Experiences of Illness and Disease
Institute for Collaborative Research in the Humanities
Queen’s University Belfast, 11-12 September 2015
The provisional programme for this conference is now available:
Friday 11th September
11.00 – 11.30 Registration
11.30 – 11.45 Welcome
11.45 – 12.45 Keynote 1:
Anne-Marie Cunningham (Cardiff University)
Learning with and from epatients
1.45 – 3.45 Panel 1:
Chair: Nathan Emmerich (QUB)
Amy Brown (SUNY Upstate Medical University, Syracuse, New York): Grounding the Relationship Between Families and Physicians in a Digital Community: A Case Study
Columba Quigley (Reading Room Editor, Medical Humanities): The ePatient and Stories of Illness
Kristen Larson (Duke University): Autopathography and Online Community: Applying Biovalue to Understand the Lisa Adams Controversy
Yewande Okuleye (University of Leicester): You call it Marijuana and I call it Medical Cannabis: Online Identity Construction and Illness Narratives from the epatient/activist Perspective.
4.00 – 5.40 Panel 2:
Chair: Pascal McKeown (QUB)
Maggie Bennett and Deborah Coleman (QUB): Cultivating Compassion through Analysis of Online Patient Narratives
Sylvia Hübel (Interfaculty Centre for Biomedical Ethics and Law, University of Leuven, Belgium): IVF Blogs and Online Forums as Sites of Patient Empowerment and Moral Agency
Angela Kennedy (independent researcher): Power and Conflict between Doctors and Patients: the Case of the ME Community
5.45 Drinks Reception, The Naughton Gallery
7.00 Conference Dinner, Deanes at Queen’s
Saturday 12th September
10.15 – 11.45 Panel 3:
Chair: Paul Murphy (QUB)
Rebecca J. Hogue (University of Ottawa, Canada): Cancer Blogging – A Survivor’s Story
Marie Ennis-O’Connor (Digital Media Strategist and Health Blogger): Connecting and Protecting: The Benefits and Pitfalls of Online Disclosure
Anne Lawlor (22q11 Ireland Support Group): Social Media as a Virtual Lifeline: A Support-Group Perspective of the Issues
12.00 – 1.00 Keynote 2:
Julia Kennedy (Falmouth University)
In Our Blood: Mapping Multiple Narrative Accounts of Leukaemia Online
1.45 – 3.15 Panel 4:
Victoria Betton (University of Leeds and mHealthHabitat programme director (NHS)): Mental Health Discourses in Social Networking Sites
Ida Milne (QUB): A Rash of Reaction: the e-parent and the 2015 Measles Epidemics
Sally Burch (Patient Blogger at “Just ME”): The Use of Patient Blogs as a Care Resource
The deadline for registration is August 14, 2015.
Further information can be found here: https://epatientsconference.wordpress.com/2015/06/24/programme-and-registration/