Authors: Gabrielle Samuel, Sandi Dheensa, Anneke Lucassen, Bobbie Farsides Paper: Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the 100 000 genomes project [OPEN ACCESS] The Chief Medical Officers’ 2017 report Generation Genome calls for a move towards integrated research and clinical practice in genomic medicine (i.e., research-clinical […]
Category: JME
Advance Euthanasia Directives in the Spotlight
Guest Post: David Gibbes Miller, Rebecca Dresser, Scott Y H Kim Paper: Advance euthanasia directives: a controversial case and its ethical implications Dutch law allows advance directives to authorize euthanasia for people who can no longer make a voluntary and well-considered choice to end their lives. People make advance euthanasia directives (AEDs) with the goal of protecting themselves from […]
Guest Post: Lesbian Motherhood and Mitochondrial Replacement Techniques: Reproductive Freedom and Genetic Kinship
Authors Giulia Cavaliere, Department of Global Health and Social Medicine, King’s College London César Palacios-González, Centre of Medical Law and Ethics, Dickson Poon School od Law, King’s College London Full Paper: Lesbian Motherhood and Mitochondrial Replacement Techniques: Reproductive Freedom and Genetic Kinship [open access] Since the UK parliamentary vote that led to their approval in February […]
More on Conscientious Objection: a Repy to a Reply
Guest post by Divine Banyubala A couple of days ago, Iain raised an interesting question about the draft Conscientious Objection (Medical Activities) Bill, and its compatibility with existing law (both civil and criminal) in respect of withdrawal of life-sustaining treatment. In an insightful reply, Mary Neal made the points that “in key areas of practice […]
Conscientious Objection: A Quick(ish) Answer
Guest post by Mary Neal, Law School, University of Strathclyde The Conscientious Objection (Medical Activities) [HL] Bill, introduced by the crossbench peer Baroness O’Loan, received its second reading in the House of Lords on Friday 26th January and successfully proceeded to the committee stage. In a post on this blog the following day, Iain posed […]
Consent and the Ethical Duty to Participate in Health Data Research
Guest Post: Angela Ballantyne and G. Owen Schaefer Paper: Consent and the ethical duty to participate in health data research Health systems are producing exponentially more data about patients and there is increasing demand to use that data – for predictive modelling, precision medicine, funding decisions and health system design. One of the features that makes […]
Past Health is Relevant in Priority-setting
Guest Post: Samuel Altman, University of Oxford Full Article: Against Proportional Shortfall as a Priority-Setting Principle Past health is regularly considered irrelevant in priority-setting decisions. Often, people mistakenly think of past health, or rather past ill-health, as a ‘sunk’ cost which can be ignored when making decisions about present and future health. However, past health is […]
Life and Death: Apples and Oranges?
Guest Post: Carl Tollef Solberg, Ole Frithjof Norheim and Mathias Barra Article: The Disvalue of Death in the Global Burden of Disease The global burden of disease (GBD) study is “a systematic, scientific effort to quantify the comparative magnitude of health loss due to diseases, injuries, and risk factors by age, sex, and geographies for […]
Ethics of Fertility Preservation for Prepubertal Children: Should Clinicians Offer Procedures Where Efficacy is Largely Unproven?
Guest Post: Rosalind J McDougall, Lynn Gillam, Clare Delany, Yasmin Jayasinghe Article: Ethics of fertility preservation for prepubertal children: should clinicians offer procedures where efficacy is largely unproven? Should we offer a procedure with so little evidence? Isn’t it burdening a sick child without real justification? But it’s often low risk – if we don’t offer, are we depriving the […]
Can Options Make Us Worse Off? Choice, Pressure, and Paid Kidney Donation
Guest Post: Julian J. Koplin Article: Choice, pressure and markets in kidneys Paying people to donate a ‘spare’ kidney might help alleviate the current shortage of transplantable organs. However, doing so would conflict with a principle widely accepted within the medical community since the earliest days of organ transplantation: that bodily organs should not be bought […]