{"id":37491,"date":"2016-09-30T10:46:47","date_gmt":"2016-09-30T09:46:47","guid":{"rendered":"http:\/\/stg-blogs.bmj.com\/bmj\/?p=37491"},"modified":"2016-09-30T10:57:44","modified_gmt":"2016-09-30T09:57:44","slug":"think-of-sepsis-a-patients-perspective","status":"publish","type":"post","link":"https:\/\/stg-blogs.bmj.com\/bmj\/2016\/09\/30\/think-of-sepsis-a-patients-perspective\/","title":{"rendered":"Matthias Wienold: Think of sepsis\u2014a patient\u2019s perspective"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-36620\" src=\"https:\/\/stg-blogs.bmj.com\/bmj\/files\/2016\/05\/Matthias_Wienold-254x300.jpg\" alt=\"Matthias_Wienold\" width=\"119\" height=\"140\" srcset=\"https:\/\/stg-blogs.bmj.com\/bmj\/files\/2016\/05\/Matthias_Wienold-254x300.jpg 254w, https:\/\/stg-blogs.bmj.com\/bmj\/files\/2016\/05\/Matthias_Wienold-300x355.jpg 300w, https:\/\/stg-blogs.bmj.com\/bmj\/files\/2016\/05\/Matthias_Wienold.jpg 669w\" sizes=\"auto, (max-width: 119px) 100vw, 119px\" \/>The case for increased attention to and better management of sepsis is growing. As the first <a href=\"http:\/\/www.worldsepsiscongress.org\/\">World Sepsis Congress<\/a> convincingly demonstrated, international and national healthcare authorities, NGOs, policy makers, clinical scientists, researchers, and pioneers in healthcare improvement need to work together to reduce the burden of this disease.<\/p>\n<p>Patients and family members are also among the pioneers of this new sepsis movement. The World Sepsis Congress provided <a href=\"http:\/\/www.worldsepsiscongress.org\/session3\">a forum for learning<\/a> from their stories and endeavours too.<!--more--><\/p>\n<p>I myself am a sepsis survivor. As a physician, I have myself to blame for not spotting the early warning signs too. I can relate to the fact that the clinical management of sepsis includes many hurdles and obstacles, which healthcare staff and patients should not have to face. At the same time, I can relate the stories of patients and families who have been affected by sepsis to the stories of those patients working to get their voice heard on the subject of patient safety. In 2005, we were at a very similar point in our movement to form networks and partnerships as Patients for Patient Safety (<a href=\"https:\/\/stg-blogs.bmj.com\/bmj\/2016\/09\/21\/matthias-wienold-patient-safety-when-patients-take-centre-stage\/\">see my previous\u00a0blog<\/a>). We started to move from being the \u201cvictims\u201d of errors, failures, and oversight to becoming key actors in this area.<\/p>\n<p>As was the case for patient safety, becoming engaged in improvements and change appears to be a good way for patients and families to cope with the grave consequences of our \u201ctoo close encounters\u201d with sepsis. As in patient safety, too, there is a lot of certainty in each individual case about what could have been done to prevent this\u2014and there are a number of best case examples.<\/p>\n<p>As a starter, physicians or nurses should know the new clinical case definition of sepsis. In the US and the UK public campaigns provide supporting materials (see below for examples).<\/p>\n<p><a href=\"http:\/\/www.cdc.gov\/sepsis\/pdfs\/sepsis-fact-sheet.pdf\">Graphic from the CDC&#8217;s sepsis factsheet<\/a><\/p>\n<p><a href=\"http:\/\/www.cdc.gov\/sepsis\/pdfs\/sepsis-fact-sheet.pdf\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-37506\" src=\"https:\/\/stg-blogs.bmj.com\/bmj\/files\/2016\/09\/cdc_sepsis.png\" alt=\"cdc_sepsis\" width=\"486\" height=\"289\" srcset=\"https:\/\/stg-blogs.bmj.com\/bmj\/files\/2016\/09\/cdc_sepsis.png 609w, https:\/\/stg-blogs.bmj.com\/bmj\/files\/2016\/09\/cdc_sepsis-300x178.png 300w\" sizes=\"auto, (max-width: 486px) 100vw, 486px\" \/><\/a><\/p>\n<p><a href=\"http:\/\/global-sepsis-alliance.org\/\">The Global Sepsis Alliance<\/a><\/p>\n<p><a href=\"http:\/\/rorystauntonfoundationforsepsis.org\/\">The Rory Staunton Foundation<\/a><\/p>\n<p><a href=\"https:\/\/www.nice.org.uk\/news\/article\/sepsis-is-just-as-urgent-as-heart-attack-says-nice\">NICE: \u201cSepsis is just as urgent as heart attack\u201d<\/a><\/p>\n<p><a href=\"https:\/\/pathways.nice.org.uk\/pathways\/sepsis\">NICE: \u201cPathways for diagnosis and treatment of sepsis\u201d<\/a><\/p>\n<p><em><strong>Matthias Wienold<\/strong>, MD, mph, has been working with patient organisations since 1986. He is board treasurer for the International Alliance of Patients Organizations and is also a member of <\/em>The BMJ&#8217;s<em>\u00a0patient panel.\u00a0<\/em><\/p>\n<p><strong>Competing interests:<\/strong>\u00a0See Matthias&#8217;s profile on <em>The BMJ&#8217;<\/em>s <a href=\"http:\/\/www.bmj.com\/about-bmj\/advisory-panels\/patient-panel-members\/matthias-wienold\">patient panel page<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The case for increased attention to and better management of sepsis is growing. As the first World Sepsis Congress convincingly demonstrated, international and national healthcare authorities, NGOs, policy makers, clinical scientists, researchers, and pioneers in healthcare improvement need to work together to reduce the burden of this disease. Patients and family members are also among [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/stg-blogs.bmj.com\/bmj\/2016\/09\/30\/think-of-sepsis-a-patients-perspective\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[5749],"tags":[],"class_list":["post-37491","post","type-post","status-publish","format-standard","hentry","category-patient-perspectives"],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/posts\/37491","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/comments?post=37491"}],"version-history":[{"count":0,"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/posts\/37491\/revisions"}],"wp:attachment":[{"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/media?parent=37491"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/categories?post=37491"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/stg-blogs.bmj.com\/bmj\/wp-json\/wp\/v2\/tags?post=37491"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}