{"id":1021,"date":"2014-12-12T21:00:30","date_gmt":"2014-12-12T20:00:30","guid":{"rendered":"http:\/\/stg-blogs.bmj.com\/adc\/?p=1021"},"modified":"2014-12-04T13:58:45","modified_gmt":"2014-12-04T12:58:45","slug":"measuring-consentability","status":"publish","type":"post","link":"https:\/\/stg-blogs.bmj.com\/adc\/2014\/12\/12\/measuring-consentability\/","title":{"rendered":"Measuring consentability"},"content":{"rendered":"

\"judgement\"<\/a>So I’m inventing words here. Could be worse though, could be “stooling” for “having a poo” or “pedagogy” for .. well, whatever you want it to mean when you really mean “be quiet and listen”.<\/p>\n

But how can you judge if a child \/ young person is sufficiently aware of ‘stuff’ to be able to consent to including themselves in a research study? We are asked in the UK by many Ethics committees to provide assessment information for young children (<8yrs), older children (8-13yr) and young people (>13yrs).\u00a0It’s almost always the parents who seem to do the deciding though. Could more be sat at the feet of the young people themselves?<\/p>\n

<\/p>\n

A group in Europe\u00a0used a questionnaire to assess how much young people did comprehend about the process. They followed this up with full on, structured, interviews to delve more deeply into it, and get a really better idea. Their work, reported at length here<\/a>, shows that the questionnaire did a good job, but that simple age banding (<9yrs, very uncommonly, \u00a0and >11.5yrs, almost always) was pretty much effective too.<\/p>\n

Fundamental to this is a question of if we should be asking for their consent. This has different\u00a0elements; an ethical one (“it’s just Fundamentally Right\u00a0to include CYP opinion”), a ‘legal’ one (“the research code say I have to “) and and instrumental one (“my research is more likely to succeed if the CYP that can consent do so”). If you get into discussion\/disagreements about it, then this may be a useful way of framing what aspect of the question – “should be asking for their consent” – is under debate.<\/p>\n

– Bob Phillips<\/p>\n","protected":false},"excerpt":{"rendered":"

So I’m inventing words here. Could be worse though, could be “stooling” for “having a poo” or “pedagogy” for .. well, whatever you want it to mean when you really mean “be quiet and listen”. But how can you judge if a child \/ young person is sufficiently aware of ‘stuff’ to be able to […]<\/p>\n

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