{"id":1079,"date":"2017-01-02T02:00:44","date_gmt":"2017-01-02T02:00:44","guid":{"rendered":"http:\/\/stg-blogs.bmj.com\/ebn\/?p=1079"},"modified":"2017-05-29T14:39:35","modified_gmt":"2017-05-29T14:39:35","slug":"loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care","status":"publish","type":"post","link":"http:\/\/stg-blogs.bmj.com\/ebn\/2017\/01\/02\/loosing-the-childs-voice-and-the-captive-mother-an-inevitable-legacy-of-family-centred-care\/","title":{"rendered":"\u2018Losing the child’s voice’ and ‘the captive mother\u2019- an inevitable legacy of family-centred care?"},"content":{"rendered":"

This week\u2019s EBN Twitter Chat on Wednesday 4th<\/sup> January between 8-9 pm (UK time) in conjunction with @WeCYPnurses will focus on child & family c\"unknown-3\"\"unknown\"entred\u00a0care.<\/p>\n

The chat wll be lead by Professor Linda Shields (@lshields50), Charles Stuart University, Australia; Professor Philip Darbyshire (@PDarbyshire), global healthcare consultant; Sarah Neil (@SarahNeill7) University of Northampton, UK; and Dr Joanna Smith
\n\"IMG_0206\"(@josmith175) theUniversity of Leeds, UK.\"unknown-2\"<\/p>\n

Participating in the Twitter chat requires a Twitter account; if you do not have one you can create an account at www.twitter.com<\/a>. Once you have an account, contributing is straightforward. You can follow the discussion by searching links to #ebnjc<\/a>, or contribute by creating and sending a tweet (tweets are text messages limited to 140 characters) to @EBNursingBMJ adding #ebnjc<\/a> (the EBN Twitter chat hash tag) to your tweet, this allows everyone taking part to view your tweets.<\/p>\n

Professor Linda Shield\u2019s recent publication (Shields Linda (2016) (Family-centred care: the \u2018captive mother\u2019 revisited, Journal of the Royal Society of Medicine; 109; 4: 137-140 (http:\/\/jrs.sagepub.com\/content\/109\/4\/137.full.pdf+html<\/a>) revisited Roy Meadow\u2019s acclaimed article \u2018The captive mother\u2019 (Arch Dis Child 1969; 44: 362\u2013367), where he eloquently described the \u201ccaptive mother\u201d who was forced to accompany her school aged child to hospital when in reality they would spend little time together. Family-centered care has evolved since that time is espoused as the dominant philosophy underpinning care in children\u2019s hospitals around the world. We postulate that that although family-centered care is embedded within most health services policies for children, it is largely untested. Evidence suggests problems with the implementation of family-centred care, with some parents feeling resentful that they have to undertake some of their child\u2019s care. We postulate that Meadow may have been right & that expecting a mother (or other carer) should stay with a hospitalized school aged child, we are not operating within the ethos of family-centred care, potentially compromising the care given.<\/p>\n

\"screen-shot-2016-12-10-at-16-56-52\"<\/a><\/p>\n

 <\/p>\n

The article is already generating debate: with suggestions that concepts such as the \u2018captive patient’ and \u2018family-centred care’ are no longer relevant in today\u2019s world of personalised care and offering care delivery choices (http:\/\/jrs.sagepub.com\/content\/109\/11\/408.1.full<\/a>). The child must be treated as an individual, with rights & choices having a voice in their cared.<\/p>\n

This Twitter chat provides a chance for nurses to discuss their experiences of working with children & families, & identify some of the common challenges of embedding child & family-centred care into practice such as:<\/p>\n

    \n
  1. Is family-centred care relevant within contemporary healthcare contexts?<\/li>\n
  2. Does family-centred care marginalise the voice of the child?<\/li>\n
  3. Given that evidence of its effectiveness is not available, is it ethical to continue pushing for family-centred care?<\/li>\n<\/ol>\n

    <\/p>\n","protected":false},"excerpt":{"rendered":"

    This week\u2019s EBN Twitter Chat on Wednesday 4th January between 8-9 pm (UK time) in conjunction with @WeCYPnurses will focus on child & family centred\u00a0care. The chat wll be lead by Professor Linda Shields (@lshields50), Charles Stuart University, Australia; Professor Philip Darbyshire (@PDarbyshire), global healthcare consultant; Sarah Neil (@SarahNeill7) University of Northampton, UK; and Dr […]<\/p>\n

    Read More…<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3606],"tags":[3614,3613,2362],"class_list":["post-1079","post","type-post","status-publish","format-standard","hentry","category-ebn-journal-chat-ebnjc","tag-ebnursingbmj","tag-ebnjc","tag-child-health"],"jetpack_featured_media_url":"","_links":{"self":[{"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/posts\/1079","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/comments?post=1079"}],"version-history":[{"count":0,"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/posts\/1079\/revisions"}],"wp:attachment":[{"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/media?parent=1079"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/categories?post=1079"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/stg-blogs.bmj.com\/ebn\/wp-json\/wp\/v2\/tags?post=1079"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}